Parents of severely disabled adult children to get more support


THE JOURNAL FILE PHOTO/CARMEN MARIE FABIO

MNA Marilyne Picard, herself the mother of a disabled child, says she’s proud to have contributed to the positive advancement for all of Quebec society in recognizing the plight of parent caregivers.

The Minister for Health and Social Services Lionel Carmant announced that effective July 1, a new measure is in place that will benefit some parents of severely disabled adult children. Thus, the hours of home support services (soutien à domicile or SAD) provided as part of the direct allowance / employment-service cheque (l’allocation directe/chèque emploi-service AD/CES) may be increased.

This measure aims to better meet the needs of certain parents living under the same roof as their severely disabled adult child by offering eligible families a minimum of 20.5 hours of SAD services per week under the AD/CES. Updating this increase in SAD service hours also implies a broadening of the principles of use of the AD/CES which will make it possible to offer these parents the possibility of being themselves hired and paid to provide certain services. Parents cannot be hired for the hours of service provided for respite. In addition, families eligible for this increase in services will also be able to choose to hire an external worker to provide certain DAS services required to meet the needs of their severely disabled adult child.

A word from MNA Marilyne Picard

"Since the birth of my daughter Dylane, I had a big goal – to better support the parents of children and adults with severe disabilities,” said Soulanges MNA and Parliamentary Assistant to Health Marilyne Picard in a communiqué released July 3. “In 15 months as an activist mom, we managed to obtain a program for severely disabled minor children (around 2,000 children). After six months as an MNA, we have implemented a new level in the existing program, thus allowing an additional 4,000 children to have access to improved financial support of $7,000 per year. Another big step has been taken. After 20 months in power, our great commitment is realized. Severely disabled children now have access to financial support. A historic breakthrough for all caregivers who work day and night for their child. This recognition is well deserved and I am very proud to have contributed to this positive advancement for all of Quebec society.”

The communiqué went on to quote Lionel Carmant saying, "Our government is committed to better supporting the parents of severely disabled adult children and various concrete measures have been planned to that end. I am very sensitive to the situation experienced by these parents who must assume extraordinary responsibilities in terms of the specific and complex care required to meet the needs of their child. We want to preserve their quality of life and reiterate that they have our full support.”

Assessment for eligibility

To be eligible for this new measure to increase the hours of SAD provided as part of the AD/CES, an assessment of the needs and situation of the severely disabled adult user, carried out by the CLSC in collaboration with the user and his relatives, must demonstrate that certain criteria are met, in particular that the parents live under the same roof as their severely disabled adult child, that they have the capacity to safely take charge of providing services to their child without risking exhaustion, and that their child has an Iso-SMAF ​​(Functional Autonomy Measuring System) profile of 9 to 14.

• Parents who would like to be hired and paid to provide certain services themselves must carefully assess the impact of this decision on their particular situation as well as on their accessibility to other financial assistance measures.

• The integrated health and social services centers will ensure that parents who wish to be themselves engaged within the framework of the AD/CES to provide certain SAD services required to meet the needs of their severely disabled adult child be informed of the status of employee they will acquire by becoming employees of the AD/CES and that the remuneration allocated to them will be taxable.

• In addition, since it is an income for the parent, taxation rules and measures will apply.

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